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Milo's Corner
As survivors, we are a group so small that there is relatively little known about our medical problems. Thus, there is little data available to our medical teams about the unique consequences of the after-effects of the Whipple operation.
I. Whipple Survivers: You have lost your auto pilot!Every survivor of the Whipple operation should realize they have lost most of the body's natural food regulation system. You yourself are now the pilot. You have to make decisions yourself on how much to eat, to absorb and to digest food. Why is this so? Because the valve of your stomach (pylorus) may have been removed, and; The valve action of your liver bile duct (for digestive enzymes) has been in-activated, and; The valve of the pancreas (more digestive enzymes) has been removed. Suppose all the valves in your house were cut out? You would have to find a way to regulate flows and use them; quickly. Most survivors regulate their food intake by eating many small meals to make use of the continual gastric and bile fluid flow. They add pancreatic enzymes to their food, like ‘Pan-0-Cap’ and other brands. When not having meals at night, you can drink liquid foods like ‘Ensure’ and other brands. Some survivors cannot absorb iron or vitamin B12 and need IV supplements. Gas production in the colon needs to be controlled; sometimes yogurt helps. A middle route between constipation and diarrhea has to be found. Each survivor has to find out what works best with the advice of his medical team and develop new habits. But you are now the pilot and there is no flight map! Unfortunately there is very little research on digestion for Whipple survivors because there are so few of us. My hope is that we can help to provide our own research here. We will try to benefit in this by trying to learn how to survive longer. So, I am asking every survivor to contribute what they can from their own experience, surgery, hospital and physician. If you will submit your experiences - I will try to add them as we go. This procedure might proceed as follows. Data on this page will be added as survivors learn about their own Whipple medical problems. Old and new survivors are asked to send information about their problems to Milo.wolff@QuantumMatter.com. I will summarize and add it to this section. If you have more data or disagree with data, please do inform me. Eventually, it is my aim that this section may become its own free-standing website - one that everyone in the world can refer to. Please provide the data to me in the format shown below and note if it is new data. Does anyone know/have data on Whipple cases that did not survive? If so, please send it on. Data is not always complete from each survivor. Errors may occur, but we will try our best to be precise and accurate. Numbers inside the parentheses brackets represent the number of survivors who have reported these problems to me. The remedies given are not meant to be medical advice. They are just my non-professional thoughts on the subjects (including yours). Any and all ideas expressed here need to be run past your own physicians and medical team.
Three-to-Five Year Survivors (5)
Six-to-Ten Year Survivors (3) A. Problems:
Seventeen Year Survivor (1) A. Problems:
II. Cancer and Vitamin DI have been reading research, mostly from Harvard U, 2006 to 2008. The evidence is piling up that simple, old-fashioned Vitamin D has another, previously unsuspected use: i.e. the regulation of metabolism of each and every cell in the body. Included in the list of diseases that result from the failure of cell regulation is Cancers. THE WISDOM OF HINDSIGHT. Medical research about the mechanism of cancers has found that a Cancer is the unregulated and rapid growth of cells in various organs. Thus it makes sense that if Vitamin D3 is abundant as a regulator, then cancers will not occur. Simple and obvious! Why didn't someone think of this before? Tentatively, it may be that all cancers have this single cause. PILLS OR SUNSHINE. Vitamin D can be obtained EITHER from Sun on the skin or from pills. Older experiments on the need of Vitamin D for just bone growth found a need for 300-500 IU per day. Lab work and experiment has shown that ten minutes of Sunshine, at noon, on a naked body, provides about 10,000 IU of Vitamin D in the skin. No ill-effects have been found for at least up to 20,000 IU per day, or more. For cell regulation, the daily requirement is about 4000-6000 IU per day. For decades, the drug industry, the AMA, and the government have used the 'bone only' requirement of 300-500 IU per day. The pharmaceutical/medical complex have created A widespread vitamin D deficiency that is manifested in increased rates of cancer, heart disease, autism, diabetes and other maladies. Correction of this error is a MAJOR NEED in the USA and the World. Blood tests for D should be a medical routine. CANCER IS A DISEASE OF CIVILIZATION. In countries of Africa and Asia, it had been noted that people who live in houses and wear full clothing get more cancer than other people. These are the wealthy people. Thus cancer was sometimes called, "A disease of civilization". In hindsight again, the reason is obvious - no sunshine. RESEARCH SUMMARY: In one interesting study, conducted on chronic pain patients in Minneapolis, Minnesota (45 degrees north latitude), it was found that 100% of African Americans, American Indians, East Africans and Hispanics were vitamin D deficient, as were most Caucasians.[1] In summer sunlight, dark-skinned people take up to 6 times as long to produce the same amount of vitamin D as light skinned people, making dark skinned people much more susceptible to vitamin D deficiency. Indoor lifestyles and the advice to lather with sunscreen, which can reduce vitamin D production during sunlight exposure by 99.5% [2] puts dark-skinned people at a considerable vitamin D deficiency disadvantage. In addition, during the winter at high latitudes in areas such as Minneapolis, there are several months where little or no vitamin D is produced by the skin due to the sun's position in the southern sky; the UVB portion of sunlight that stimulates vitamin D production is filtered out by the atmosphere during those months. This is known as "vitamin D winter" and is especially important in the northern US, northern Europe and all of Canada. It is absolutely essential for dark-skinned adults to take vitamin D supplementation of 4,000 to 5,000 IU per day year around or regularly use a tanning bed to reduce the risk of cancer, hypertension, diabetes, etc., that plague them. It is also critical for most Caucasians during winter. Another impressive result comes from a clinical observation of five vitamin D-deficient patients who suffered from myopathy, a disease of bone and muscle tissue. They were confined to wheelchairs and experienced severe fatigue, weakness, and chronic pain. After receiving 50,000 IU per week of vitamin D, all regained enough strength and energy within four to six weeks to be mobile and functional, and their aches and pains disappeared. [3] Other research reported that five chronic-pain patients at John Hopkins University Medical School were treated with vitamin D, and their pain resolved within a week! [4]
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