Confronting Pancreatic Cancer

Survivor Stories

Mary DiPaolo - diagnosed January 2005

Dale Haskell - diagnosed December 1996

Judith Hettler - diagnosed July 2001

Walter Leaman - diagnosed August 2002

Shari Marchand - diagnosed March 2001

Ted McFerrin - diagnosed May 2005

Joseph E. O'Neill - diagnosed March 2005

Richard Philbin - diagnosed February 1998

If you consider yourself a long-term survivor, and are interested in sharing your story, please use our online submission form.
Or you can contact webmaster@pancreatica.org

To learn more about interviewing tips for long-term survivors of pancreatic cancer, click here.

Patterns of Hope: The Survivor Stories
Thoughts on Families who Have Lived Long-term with Pancreatic Cancer

After hearing that someone you care about has pancreatic cancer, one of the first things you confront is the reality of statistics. But there are long-term survivors. They do exist - and often thrive. And their stories are important beacons of hope for others confronting this serious foe.

In her book, There's No Place Like Hope, "terminal" cancer survivor Vickie Girard observes, "I have often thought of cancer as the schoolyard bully … the mere thought of him can send people running. But all it takes to diminish his power is for a couple of people to stand up to him. That's what a cancer success story does - it stares down the bully."

Such is the long operating principle of the Lorenzen Cancer Foundation and the Pancreatica resource. The aim from the outset has been to shine a hopeful and informational light at this disease. It is also the motivation of the Survivors page on this site. And, as the stories here will attest, it is the meaningful goal for these long-term survivors too, as they transform their private challenges into social good.

A choice from the outset was to let people self-define "long-term". This openness led to a wide array of people raising their hands as survivors, and has brought forth a diversity of success stories. The initial outreach went to a large online community of pancreatic cancer patients, caregivers, doctors and researchers, under the auspices of the Association of Cancer Online Resources (ACOR). As the invitation stipulated, "a long-term survivor is anyone who thinks they are."

It might be theorized that long-term survivors are also (chances are) those who "thought they would be." One of the many commonalities among the initial survivor families is a conviction, almost from the beginning, that they were going to beat the odds.

Due to the self-selective nature of those who feel moved to tell personal stories and why, there are often recurring themes. Multi-generational families tell stories to bequeath history and values to their children. Founders of organizations tell them to transmit their original visions in hopes that those will live on. Military veterans do so because they finally have enough distance from their wars that they feel ready to speak about them. Patterns always emerge. Threads intertwine.

For this particular series, we wanted (primarily) to help people share the details of their exceptional medical journeys. We know what clinical factors make pancreatic cancer survival more likely: overall age and good health, early diagnosis, tumor location, eligibility for surgery, world-class hospitals, skilled doctors. Most (but not all) of our initial interviewees had many (but not all) of those things going for them. But so do many people who still aren't so lucky. We wondered whether there were also other, non-medical situations or attributes that these long-term survivors would turn out to have in common.

There were. And they're not news bulletins. But they do leap off the page as you read these stories. Positivity. Indomitability. Spirituality. Appreciation of the little things. A craving for information. Continuing things they love doing. Not taking no for an answer. Strong, devoted and ever-present caregivers. Hope in the face of (what often seems) no hope. And humor, always humor. One survivor has had this magnet on his refrigerator since the very beginning: I plan to live forever. So far, so good.

And even now - when it seems that the hard part may be over, and the coast clear:

All have an impassioned, downright mission-driven determination to share their experience with people who are taking this journey after them. To continue helping others.

And - they share a certain thankfulness for the experience they've been through. As one wife and caregiver put it, "there was a special sweetness and richness about that time, as we were forced to focus only on each other for a change, and to talk and reflect about what really mattered."

In many cultures, stories have been told out loud and handed down for centuries, from one generation to the next, in order to communicate and preserve the significant. In the telling of those stories, there is respect and honor accorded to those who speak. For those who listen, there is an implied stewardship... the responsibility to receive, embrace, respond, learn, and pass on what they've heard.

We hope you'll feel that too, in these tales - whether you have your own connection to pancreatic cancer, or just want to be inspired and humbled - and reminded - about the insignificance of most of our daily problems. And about the triumph of the human spirit.

____________________________

Alison Wiley is a close friend of Ralph and Mary Jo Edwards, who are well on their way to becoming another long-term survivor and caregiver. She is also an oral historian who helped the initial survivors on the www.pancreatica.org website tell their stories.

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	Survivor Stories Mary DiPaolo - diagnosed January 2005 Dale Haskell - diagnosed December 1996 Judith Hettler - diagnosed July 2001 Walter Leaman - diagnosed August 2002 Shari Marchand - diagnosed March 2001 Ted McFerrin - diagnosed May 2005 Joseph E. O'Neill - diagnosed March 2005 Richard Philbin - diagnosed February 1998 If you consider yourself a long-term survivor, and are interested in sharing your story, please use our online submission form. Or you can contact webmaster@pancreatica.org To learn more about interviewing tips for long-term survivors of pancreatic cancer, click here. Patterns of Hope: The Survivor Stories Thoughts on Families who Have Lived Long-term with Pancreatic Cancer After hearing that someone you care about has pancreatic cancer, one of the first things you confront is the reality of statistics. But there are long-term survivors. They do exist - and often thrive. And their stories are important beacons of hope for others confronting this serious foe. In her book, There's No Place Like Hope, "terminal" cancer survivor Vickie Girard observes, "I have often thought of cancer as the schoolyard bully … the mere thought of him can send people running. But all it takes to diminish his power is for a couple of people to stand up to him. That's what a cancer success story does - it stares down the bully." Such is the long operating principle of the Lorenzen Cancer Foundation and the Pancreatica resource. The aim from the outset has been to shine a hopeful and informational light at this disease. It is also the motivation of the Survivors page on this site. And, as the stories here will attest, it is the meaningful goal for these long-term survivors too, as they transform their private challenges into social good. A choice from the outset was to let people self-define "long-term". This openness led to a wide array of people raising their hands as survivors, and has brought forth a diversity of success stories. The initial outreach went to a large online community of pancreatic cancer patients, caregivers, doctors and researchers, under the auspices of the Association of Cancer Online Resources (ACOR). As the invitation stipulated, "a long-term survivor is anyone who thinks they are." It might be theorized that long-term survivors are also (chances are) those who "thought they would be." One of the many commonalities among the initial survivor families is a conviction, almost from the beginning, that they were going to beat the odds. Due to the self-selective nature of those who feel moved to tell personal stories and why, there are often recurring themes. Multi-generational families tell stories to bequeath history and values to their children. Founders of organizations tell them to transmit their original visions in hopes that those will live on. Military veterans do so because they finally have enough distance from their wars that they feel ready to speak about them. Patterns always emerge. Threads intertwine. For this particular series, we wanted (primarily) to help people share the details of their exceptional medical journeys. We know what clinical factors make pancreatic cancer survival more likely: overall age and good health, early diagnosis, tumor location, eligibility for surgery, world-class hospitals, skilled doctors. Most (but not all) of our initial interviewees had many (but not all) of those things going for them. But so do many people who still aren't so lucky. We wondered whether there were also other, non-medical situations or attributes that these long-term survivors would turn out to have in common. There were. And they're not news bulletins. But they do leap off the page as you read these stories. Positivity. Indomitability. Spirituality. Appreciation of the little things. A craving for information. Continuing things they love doing. Not taking no for an answer. Strong, devoted and ever-present caregivers. Hope in the face of (what often seems) no hope. And humor, always humor. One survivor has had this magnet on his refrigerator since the very beginning: I plan to live forever. So far, so good. And even now - when it seems that the hard part may be over, and the coast clear: All have an impassioned, downright mission-driven determination to share their experience with people who are taking this journey after them. To continue helping others. And - they share a certain thankfulness for the experience they've been through. As one wife and caregiver put it, "there was a special sweetness and richness about that time, as we were forced to focus only on each other for a change, and to talk and reflect about what really mattered." In many cultures, stories have been told out loud and handed down for centuries, from one generation to the next, in order to communicate and preserve the significant. In the telling of those stories, there is respect and honor accorded to those who speak. For those who listen, there is an implied stewardship... the responsibility to receive, embrace, respond, learn, and pass on what they've heard. We hope you'll feel that too, in these tales - whether you have your own connection to pancreatic cancer, or just want to be inspired and humbled - and reminded - about the insignificance of most of our daily problems. And about the triumph of the human spirit. ____________________________ Alison Wiley is a close friend of Ralph and Mary Jo Edwards, who are well on their way to becoming another long-term survivor and caregiver. She is also an oral historian who helped the initial survivors on the www.pancreatica.org website tell their stories.

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	webmaster

	©2000-2007 Pancreatica.org - All Rights Reserved www.pancreatica.org