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In many cultures, stories have been told out loud and handed down for centuries, from one generation to the next, in order to communicate and preserve the significant. In the telling of those stories, there is respect and honor accorded to those who speak. For those who listen, there is an implied stewardship… the responsibility to receive, embrace, respond, learn, and pass on what they’ve heard.

We hope you’ll feel that too, in these tales – whether you have your own connection to pancreatic cancer, or just want to be inspired and humbled – and reminded – about our daily problems. And about the triumph of the human spirit.

 

If you consider your journey a source of inspiration and are interested in sharing, please contact us at info@pancreatica.org

Pancreatic Cancer Stories of Life and Hope

After hearing that someone you care about has pancreatic cancer, one of the first things you confront is the reality of statistics. But there are long-term survivors. They do exist – and often thrive. And their stories are important beacons of hope for others confronting this serious foe.

In her book, There’s No Place Like Hope, “terminal” cancer survivor Vickie Girard observes, “I have often thought of cancer as the schoolyard bully … the mere thought of him can send people running. But all it takes to diminish his power is for a couple of people to stand up to him. That’s what a cancer success story does – it stares down the bully.”

Such is the long operating principle of Cancer Patients Alliance and the Pancreatica resource. The aim from the outset has been to shine a hopeful and informational light at this disease. It is also the motivation of the stories of inspiration page on this site. And, as the personal accounts here will attest, it is the meaningful goal for these long-term survivors too, as they transform their private challenges into social good.

Due to the self-selective nature of those who feel moved to tell personal stories and why, there are often recurring themes. Multi-generational families tell stories to bequeath history and values to their children. Founders of organizations tell them to transmit their original visions in hopes that those will live on. Military veterans do so because they finally have enough distance from their wars that they feel ready to speak about them. Patterns always emerge. Threads intertwine.

For this particular series, we wanted (primarily) to help people share the details of their exceptional medical journeys. We know what clinical factors make pancreatic cancer survival more likely: overall age and good health, early diagnosis, tumor location, eligibility for surgery, world-class hospitals, skilled doctors. Most (but not all) of our initial interviewees had many (but not all) of those things going for them. But so do many people who still aren’t so lucky. We wondered whether there were also other, non-medical situations or attributes that these survivors would turn out to have in common.

There were. And they’re not news bulletins. But they do leap off the page as you read these stories. Positivity. Indomitability. Spirituality. Appreciation of the little things. A craving for information. Continuing things they love doing. Not taking no for an answer. Strong, devoted and ever-present caregivers. Hope in the face of (what often seems) no hope. And humor, always humor. One survivor has had this magnet on his refrigerator since the very beginning: I plan to live forever. So far, so good.

And even now – when it seems that the hard part may be over, and the coast clear:

All have an impassioned, downright mission-driven determination to share their experience with people who are taking this journey after them. To continue helping others.

And – they share a certain thankfulness for the experience they’ve been through. As one wife and caregiver put it, “there was a special sweetness and richness about that time, as we were forced to focus only on each other for a change, and to talk and reflect about what really mattered.”

HONOR A LOVED ONE
BY SHARING YOUR STORY

You can honor your loved one by sharing your story with us. Whether it’s your personal story, honoring a friend or relative’s journey, or why you support the cause, we want to hear from you!

Pancreatic cancer Stories

Genetic Testing for Pancreatic Cancer

PROPOSED: Every newly diagnosed person with pancreatic cancer (ductal adenocarcinoma of the pancreas) should receive genetic screening prior to beginning treatment – to test for germline genetic mutations in the homologous recombination DNA repair pathway, including genes such as BRCA1, BRCA2, PALB2, and others. These results, in from 12% to 17% of pancreatic cancer patients, suggest that treatment that includes DNA cross-linking agents such as platinum compounds or PARP inhibitors may be superior to standard best practices therapy.


OFFER: Color Genomics offers a 30-gene cancer panel for $224 (normally $249) when the Promotion Code “PANCREATIC” is entered at checkout (price will reduce upon entering this code). This is a physician-ordered saliva kit. Click Here for more information

RATIONALE: The age of precision medicine in pancreatic cancer is approaching … [MORE]

Our mission is to promote awareness, increase education, and further pancreatic cancer research, specifically research aimed at early diagnosis.

Pancreatic cancer is the 3rd leading cause of cancer-related death in the U.S. It is expected to become the 2nd leading cause of cancer-related death by the year 2020. Studies show that death rates for pancreatic cancer are increasing while for most other cancers they are declining.
It’s time to change these statistics!

Early diagnosis is key:
Survival increases dramatically if patients are diagnosed in time for surgery!

For medical information Click Here for our sister site Pancreatica.org

WAYS TO MAKE AN IMPACT.

Walk, Run, or Choose your own!

Choose a walk, run, or any other activity that you like and work to raise donations leading up to your Event! Simply set up your participation page and we will be in touch!

DEDICATE YOUR RACE

Already registered for your next Race? Dedicate your participation to Pancreatic Cancer. Simply set up your participation page and together we will work towards our shared mission!

ON FACEBOOK​

Creating a Facebook Fundraiser is easy: Click the Link below and Facebook will take you through the steps! Dedicate your Birthday or another important date to honor a loved one.

Participate in #GivingTuesday for Pancreatic Cancer on December 3rd 2019!! 

Click Here to Add a Calendar Reminder! 

Amazon donates 0.5% of the price of your eligible AmazonSmile purchases to help fight pancreatic cancer!
AmazonSmile is the same Amazon you know. Same products, same prices, same service. Simply use our Link to start shopping!

Speak with a Survivor:

Call 1-800-433-0464 for a free service that will place you in contact with a fellow survivor, or to volunteer to contact someone more recently diagnosed.


Pancreatic Cancer Blog

One of the observations that physicians often made when the standard of care treatment typically consisted of the chemotherapy drug agent of gemcitabine alone, was that many patients with pancreatic cancer (ductal adenocarcinoma of the pancreas) seemed to feel better after the initiation of treatment… More Here

 

HONOR A LOVED ONE
BY SHARING YOUR STORY

You can honor your loved one by sharing your story with us. Whether it’s your personal story, honoring a friend or relative’s journey, or why you support the cause, we want to hear from you!

Best of the Blog

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MAKE AN IMPACT

Pancreatic cancer is expected to become the 2nd leading cause of cancer-related death by the year 2020

Make a tax-deductible Donation

TOGETHER WE CAN MAKE A DIFFERENCE !